Mission 4 Macie Digi

This is what my Mom posted today:

Hello Everyone!!

I know a lot of the things I post here on my blog are all about fun and crafting!!

Today, is personal...I'd like to introduce you to a sweet and innocent little girl, who loves Jesus and her family with all her heart, who treasures every day, loves smiling, rainbows, dogs, butterflies and ladybugs...a lot like any other young girl...Only Macie has a very rare and hardly heard of, disorder called GLUT1. Shamefully, I take the fact that I have healthy children for granted...Do you?!?!

Please take a moment to meet Macie

Learn a little about Macie, her family and her Mission:
(click to read)

Sweet Macie is the daughter of my husband's cousin Glenna and her husband John Steele.

They are fighting hard, along side of Macie, for Macie and all the other children who have been diagnosed with GLUT1 and for those who are yet to be diagnosed.

They have march in Washington, the have attended Epilepsy Walks and even had the chance for Macie to represent more than 30,000 children in the US with epilepsy as the Epilepsy Foundation of Kentuckiana's Kids Speak Up! representative in Washington, D.C. The Article below is in the 2010 Issue 1 of of The Illuminator (a publication of the Epilepsy Foundation of Kentuckiana):

(click to read)

This summer, John and Glenna will be hosting the 2010 GLUT Conference in Louisville, Kentucky.

My 13 year old daughter, Hannah will be volunteering at the conference as there is plenty of need there when it comes to physical help. Hannah also wants to give financially and asked me if maybe I could design a Macie Digi. I did and here she is:

Macie's Rainbow

I will be selling this Sugar Stick Digi for Macie.

For a donation of $5 you can have her!!

100% of the proceeds will go to

Mission 4 Macie

If you would like to help Macie and all the children with Epilepsy and GLUT1

please email me at
byloridesigns@gmail.com
with your email address, I will invoice you via paypal, then send your Macie's Rainbow Digi!!

I thank each of you in advance for helping Macie!!

Please feel free to spread the news and post this post on your own blog, if you do so and purchase Macie's Rainbow Digi, Please leave a comment on this post letting me know you spread the word and bought the digi....I will then put your name into a drawing to win your own custom designed digi!!

Blessings and Hugs -

and